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BEYOND COMPLIANCE COORDINATING COMMITTEE (BCCC) BROWN BAG SERIES
Politics of (En)Closure and Abolition: A Journey Into and Out of the Asylum
Date: Oct. 21, 2009
Room: ERC Room, Huntington Hall 056 Syracuse University
Time: 12:30 to 1:30 pm
Cost: FREE
Light snacks will be provided.
The presenters will share current research from their dissertations.
Genealogies of Resistance to Incarceration: Deinstitutionalization and Prison Abolition Politics in the U.S. 1950-Present Liat Ben-Moshe Ph.D. Candidate in Sociology, Disability Studies and Women's Studies at Syracuse University Please come join us, Beth Mount, Commissioner Ritter and Max Chmura (and/or their representatives) and John Gleason from the CNYDSO.
"The Friction in Our Machinery ": (Dis)ability & Rhetorical Education in the New York State Asylum for Idiots, 1854-1884 Zosha Stuckey Ph.D. Candidate & Writing Instructor Composition and Cultural Rhetoric and Disability Studies at Syracuse University
Rachael A. Zubal-Ruggieri
Information Coordinator, Center on Human Policy, Law, and Disability Studies Coordinator of Computer & Technical Applications, Early Childhood Direction Center Editorial Staff, Intellectual and Developmental Disabilities (IDD) Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
315-443-2761
FAX 315-443-4338
E-mail: thechp@syr.edu
E-mail: razubal@syr.edu
http://thechp.syr.edu
http://ecdc.syr.edu
http://disabilitystudies.syr.edu
Rick Lavoie is coming to Norman Howard School this Thursday from 10-12 - $20 per person. It appears that there is still space available -
registration deadline is 9/2/2009.
Mid-Summer Community Recreation and Fitness Fun for All Ages at
CDS!
Session Runs August 10th-October 16th
**Click
Here to Download the Program Guide to Your Computer**
Classes are open to the public and community members of all
abilities!
Enjoy a class with your child or loved one! Get fit and meet new
friends in a warm water aquatics class!
·
Zumba Fitness
·
WII Bowling
·
Fitness Club
·
Water Walking (Warm Water Therapy Pool!)
·
Special Needs Swim Times
·
Aqua Variety Pack
·
Water Walking Therapeutic Swim Times - Drop in!
·
Water Arthritis
·
Tai Chi
·
Friday Night Movies
·
Acting Improv
·
Nail Salon Beauty Group
·
Exploring Music
·
Piano Basics
·
Guitar Basics
·
Ceramics: an Intro to Wheel Throwing
·
Ceramics: an Intro to Hand Building
·
Explorations in Mixed Media
·
Many One Time Arts & Crafts Events for All Ages (see guide)
·
Pet Therapy
·
Cooking with Sarah
·
Simple Sweets
·
Book Writing Club
·
Basic Computer and Internet Use
·
Free Sibshops fun groups for siblings of those with disabilities
·
Free Autism Skill Building Program for ages 6-16
·
Parents Group
and more!
CDS PARENT SUPPORT & EDUCATION
GROUP
For Parents and Family Members of individuals with
Developmental Disabilities
For information or to register for the Parent Support Group,
please contact Shannon Doherty at (585) 347-1059 or sdoherty@cdsunistel.org.
The Parent Support Group will meet on the following dates:
Saturday, July 25, 2009, 10am-12pm, 860 Hard Rd
Open Discussion with Lynda Spiegel
Saturday, August 15, 2009, 10am-12pm, 860 Hard Rd
Open Discussion with Lynda Spiegel
Saturday, August 29, 2009 10am-12pm, 860 Hard Rd
Open Discussion with Lynda Spiegel
Saturday, September 12, 2009, 10am-12pm, 860 Hard Rd
James Traylor Presents Special Needs Trusts Educational Workshop
Sibshops Group will be held for siblings age 6-13 years old
Saturday, September 26, 2009, 10am-12pm, 860 Hard Rd
Open Discussion with Lynda Spiegel
You are invited, encouraged, and very welcome to participate in
any or all of these family events!
*Please note, no Sibshops Group or Play Group will be held in
July or August*
Video conference on Medicaid Service Coordination (MSC) for
Families
8/3/09 from 10 AM – 12 noon at the
Finger Lakes DDSO Newark
For questions regarding course content, call Mary Jo Hebert,
Capital District Office of Parent to Parent of NYS at
1-800-305-8817.
Register online at www.omr.state.ny.us/wp/index.jsp or call
OMRDD's Talent Development and Training Office at 518-473-1190.
Service Coordination is an important support in the life of a
child with a developmental disability and his or her family.
Under Medicaid Service Coordination (MSC), parents and family
members are recognized as valuable participants in their child's
service coordination program. As a valuable participant, it is
important that family members are well informed about how MSC
works and their rights under the program. That is what this
training is all about. By being informed, you and your child's
service coordinator can become partners in advocating for and
gaining access to, necessary supports and services for your
child.
Course Objectives
·Learn about the features and benefits of Medicaid Service
Coordination.
·Understand your rights as family members receiving MSC.
·Learn what to look for when selecting a service coordinator.
Learn how, together with your service coordinator, to advocate
for and gain access to necessary services and supports.
Understanding and Educating Students with Asperger Syndrome
Below is a link for the brochure for the October 6 conference on Understanding and Educating Students with Asperger Syndrome.
The conference location is Depew, New York.
Understanding and Educating Students with Asperger Syndrome Conference NEW
Free Educational Workshop–Life Care Plans Thursday July 23rd
Time: 6-8pm
Location: The Pieters Family Life Center
1025 Commons Way
Rochester, NY 14623
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Special Needs Trusts
Guest: Rebecca Gordon, RN, CLNC, CLCP*
Life Care Plan: Many parents of a child with special needs worry about the future costs of providing care. A life care plan takes into consideration basic needs, goals and strategies from a person centered perspective. The plan helps parents address such issues as the cost of housing, supplemental income, elective medical coverage, transportation as well as parents goals.
RSVPs are appreciated, but not required—email
dboyce@finsvcs.com.
James Traylor
Director
SpecialCare Planning Team
Financial Architects-MassMutual
Free Educational Workshop–Life Care Plans Tuesday July 21st.
Time: 6-8pm
Location: LDA Life and Learning Services
339 East Ave, Suite 420
Rochester, NY 14604
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Life Care Plan
Life Care Plan: Many parents of a child with special needs worry about the future costs of providing care. A life care plan takes into consideration basic needs, goals and strategies from a person centered perspective. The plan helps parents address such issues as the cost of housing, supplemental income, elective medical coverage, transportation as well as parents goals.
Feel free to contact James Traylor with any questions you may have prior to the event.
James Traylor
Director
SpecialCare Planning Team
Financial Architects-MassMutual
Free Educational Workshop on Tuesday June 2nd
Time: 6-8pm
Location: The Pieters Family Life Center
1025 Commons Way
Rochester, NY 14623
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Special Needs Trusts
Guest: LISA M. POWERS, ESQ. The Powers Law Firm, P.C., in
Brighton, NY*
Special Needs Trusts: If a person with a disability or other
special need owns or inherits property above a certain dollar
value, it could make him or her ineligible for certain
government programs—and could actually have drastic negative
affects on his or her financial situation. Establishing a
special needs trust designed especially for the individual with
a disability or other special need can benefit a quality
lifestyle for a lifetime. Understanding the complexities of
these Trust Agreements is very valuable when creating a life
care plan for a child with special needs.
We hope you can attend this free seminar.
RSVPs are appreciated, but not required—email
dboyce@finsvcs.com.
Feel free to contact James Traylor with any questions you may
have prior to the event.
Free Educational Workshop on
Thursday June 4th.
Time: 6-8pm
Location: The Arc of Livingston-Wyoming County 18 Main Street
Mt. Morris, NY 14510
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic(s): Life Care Plan / Letter of Intent
Life Care Plan: Many parents of a child with special needs worry
about the future costs of providing care. A life care plan takes
into consideration basic needs, goals and strategies from a
person centered perspective. The plan helps parents address such
issues as the cost of housing, supplemental income, elective
medical coverage, transportation as well as parents goals.
Letter of Intent: Making sure that an individual with special
needs is completely cared for when you're gone is very important
to you. However, a Will only specifies certain instructions as
to the care of a special needs individual. Creating a letter of
intent allows you to leave specific instructions, such as what
your child likes to do for fun, and their strengths and
weaknesses. It even allows input and instruction from the
child's care giver.
Feel free to contact James Traylor with any questions you may
have prior to the event.
Free Educational Workshop on Tuesday June 9th
Time: 6-8pm
Location: LDA Life and Learning Services 339 East Ave, Suite 420
Rochester, NY 14604
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Special Needs Trusts
Guest: George H. Gray, Attorney at Law, Partner in the Law Firm
of Gray & Feldman LLP in Rochester, New York*
Special Needs Trusts: If a person with a disability or other
special need owns or inherits property above a certain dollar
value, it could make him or her ineligible for certain
government programs—and could actually have drastic negative
affects on his or her financial situation. Establishing a
special needs trust designed especially for the individual with
a disability or other special need can benefit a quality
lifestyle for a lifetime. Understanding the complexities of
these Trust Agreements is very valuable when creating a life
care plan for a child with special needs.
Feel free to contact James Traylor with any questions you may
have prior to the event.
Free Educational Workshop on Thursday June 25th
Time: 6-8pm
Location: LDA Life and Learning Services 339 East Ave, Suite 420
Rochester, NY 14604
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Letter of Intent
Letter of Intent: Making sure that an individual with special
needs is completely cared for when you're gone is very important
to you. However, a Will only specifies certain instructions as
to the care of a special needs individual. Creating a letter of
intent allows you to leave specific instructions, such as what
your child likes to do for fun, and their strengths and
weaknesses. It even allows input and instruction from the
child's care giver.
An Integrative Approach to Attention Deficit Disorder and Learning Disabilities
|
with
Dr.
Margot
Weinberg
Pediatric
Integrative
Medicine,
LLC
Toby
Village
Office
Park,
Pittsford,
New
York
In
this
half
day
conference,
Dr.
Weinberg
will
take
an
integrative
approach
to
the
treatment
and
management
of
Attention
Deficit
Disorder
and
Learning
Disabilities.
Dr.
Weinberg
will
delve
into
the
impact
of
diet
and
toxic
exposures
on
development
and
will
explore
the
use
of
alternative,
non
traditional
treatment
methods
to
alleviate
symptoms.
Alternative
Treatments
that
will
be
explored
Nutrition
Healing
Vitamins
Mineral
Supplements
Mind
/BodyMedicine
And
more…
Date:
Friday,
June
12,
2009
Cost:
$ 45
per
person
parking
included-must
park
in
the
Court
Street
Garage
vouchers
will
be
distributed
at
the
end
of
the
conference
Check-in:
9 am
Conference:
9:20
am
to
1:30
pm
Location:
Bausch
&
Lomb
Public
Library
–
Kate
Gleason
Auditorium(115
South
Avenue,
Rochester
NY,
14604)
Light
morning
refreshments
will
be
provided
_____________________________________________________________________________________
An
Integrative
Approach
-
June
12,
2009
Registration
Form
(Special
accommodations
must
be
requested
by
5/12/09)
Payment
must
accompany
registration
To
register
by
phone
with
a
credit
card
call
Ellen
Hart
at
263-3323
ext.
276
Or
complete
the
registration
form
below
and
mail
to: LDA
Life
and
Learning
Services339
East
Avenue,
Suite
420,
Rochester
NY
14604
or
fax
to
546-4116attn:
Mary
Mancini
Name:___________________________________________E-Mail:______________________Phone#:_______________
Address:_________________________________________________________City:___________________Zip_________
O Organization:________________________________________________________Title:___________________________
Payment
Method:
Check
______
Purchase
Order_____
Credit
Card_____
Amount
$
45
Please
include
check
or
purchase
order
#
_______________________________________________
For
payment
by
credit
card
please
circle
one:
Master
Card
Visa
Credit
Card
#__________________________________________Exp.
Date___________CCV
Code:_________
Card
Holder’s
Signature:______________________________________________________________________
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Sexuality Conference - June 12 2009
Click to view the
announcement.
The State of New York
Office of Mental Retardation and Developmental Disabilities
Announces a series of Public Forums for the
Statewide Comprehensive Plan: 2009 – 2013
"We help people with developmental disabilities live richer
lives."
The New York State Office of Mental Retardation and
Developmental Disabilities (OMRDD) is pleased to announce that
it will be conducting a series of Public Forums to gather
information for the development of the OMRDD Statewide
Comprehensive Plan for Services for the Period 2009 through
2013.
OMRDD will incorporate the ideas, suggestions, and comments
received through these Public Forums to update the 2008
Statewide Comprehensive Plan to cover the upcoming five year
period 2009 through 2013. The 2008 Plan documented OMRDD's
strategic mission and vision. As a result, OMRDD developed many
activities and initiatives that reflect its mission statement,
"We help people with developmental disabilities live richer
lives" and its vision to assist people to enjoy meaningful
relationships, experience health and growth, live in the home of
their choice, and fully participate in their communities. The
2008 Comprehensive Plan, corresponding Strategic Framework and
subsequent Interim Report can be reviewed on the OMRDD web site
at
http://www.omr.state.ny.us/507plan/index.jsp.
Now OMRDD wants to hear from self-advocates, parents of people
with developmental disabilities, other family members,
non-profit providers, professionals, advocates, and other
interested parties about how well our system of services and
supports is achieving its mission, and how the system can
further improve. OMRDD is particularly interested in hearing
about the following themes, but commentary is not limited solely
to these themes.
1. Given the current fiscal downturn the federal and state
governments are experiencing, what are the most important needs
we should be addressing?
2. Tell us about what is working well across the state.
What should we be trying to do more of?
3. What steps can we take to make the developmental
disabilities service system more person centered and
individualized? How can we make change happen?
4. How can we support more people with developmental
disabilities to be employed?
5. How do we achieve quality delivery of services while
maximizing cost effectiveness and efficiency?
6. If you are a person with a developmental disability,
what supports do you most need to live the life you want?
Speakers will be asked to register in advance of the forum,
limit their comments to no more than three (3) minutes, and
bring two (2) copies of the testimony. Written testimony can
also be submitted to
Cynthia Redshaw at OMRDD, 44 Holland Avenue, Albany, NY 12229.
Please also note that for the first time, OMRDD is collecting
information for the Plan through a very brief survey of
priorities that can be accessed at its website
www.omr.state.ny.us. Please take a few minutes to complete that
anonymous survey, especially if you cannot participate in the
Forums or do not wish to submit written testimony.
A schedule of the Public Forum dates, times and locations is
listed below.
Please register using the following contact information. Speaker
opportunities are limited; the DDSO will confirm individuals and
times prior to the Forum.
A video synopsis of the forums can be viewed online at
www.omr.state.ny.us following the events.
For general information about the Public Forums, please contact
OMRDD's Bureau of Planning:
Phone: (518) 474-4904 Fax: (518) 473-0054 E-mail:
cynthia.redshaw@omr.state.ny.us
2009 – 2013 OMRDD Statewide Comprehensive Plan: Public Forum
Schedule
(To register, obtain more information or directions to the
hearing location, or to arrange for a special accommodation,
please contact the person for that forum as noted below.)
These Forums will be held at multiple locations in the state and
will be conducted as live video conferences with Commissioner
Diana Jones Ritter. * The Commissioner will be in attendance at
the New York City, Schenectady and Rochester locations and will
be participating via video-conference at all other locations.
Monday, June 15, 2009 – 3 pm to 5:30 pm
Rochester*: Finger Lakes DDSO, Room 3/4, 620 Westfall Road
(Contact: Tracey Scott (585)241-5729 or
tracey.l.scott@omr.state.ny.us
Pamela Lane (585)241-5768 or
pamela.lane@omr.state.ny.us)
Janice Fitzgerald
Parent to Parent of NYS
P.O. Box 1296
Tupper Lake, NY 12986
www.parenttoparentnys.org
518-359-3006, fax 518-359-2151
As people who support individuals with exceptional needs, we
have to understand early on that people with disabilities are
human beings with potential and that we are the ones best
positioned to unlock that potential. Part of the work at Parent
to Parent of NYS is to empower parents to face the challenges
and believe in their child and advocate so they can reach their
potential.
OMRDD Video Conference on Long Term Care 6/12
Rochester and Newark
Save this date: Friday June 12,
9:30 am – 12:00 noon
OMRDD will be hosting a Videoconference on "NY Connects: Choices
for Long Term Care – Your Connection to the Future of Long Term
Care."
The purpose of this videoconference is to introduce to some and
review for others the roles and responsibilities of NY Connects,
as well as to identify opportunities for OMRDD to support and
connect with this viable project.
Below you will find a summary of NY Connects and its mission, as
well as a list of sites where the videoconference will take
place.
RSVP: Please let us know if you are interested in attending by
calling or emailing the Office of Housing Initiatives and
Supports no later than Friday, June 5, 2009.
Phone: 518-473-1973
E-Mail: Lauren.M.Baideme@omr.state.ny.us
Thank you and we look forward to seeing you there.
NY Connects Summary:
NY Connects: Choices for Long Term Care is a trusted resource in
the community that provides free Information and Assistance on
long term care. The program provides unbiased information on the
full range of long term care services available and empowers
individuals to make informed choices. NY Connects services older
adults and people of all ages with disabilities. The programs
are administered locally at the county level by the Office for
the Aging and the Department of Social Services. In addition to
the provision of Information and Assistance, NY Connects is also
required to conduct a thorough screening, provide public
education, and develop Long Term Care Councils. The Long Term
Care Councils are made up of consumers and providers, government
officials, advocacy groups, and other such key stakeholders. The
Councils are charged with identifying the needs in the long term
care system and offering solutions to meet these needs. NY
Connects is in its third year of operation, with 53 out of 54
participating counties providing Information and Assistance on
the local level. For more information regarding NY Connects,
please visit our website at
www.nyconnects.org
List of Sites for Video Conference:
Host Site: Capital District-Schenectady (Rm 2)
Remote Sites:
Broome-Oneonta (VC Rm)
Broome-Binghamton (Classroom 6)
Central NY-Rome (Gore Rd)
Central NY-Syracuse (Rm 3C07)
Finger Lakes-Rochester (Rm ¾)
Finger Lakes-Newark (V149)
Hudson Valley-Thiells (Bldg 5, Rm 11)
Long Island-Hauppauge (Large Conf Rm)
Sunmount-Potsdam (VC Rm)
Sunmount-Tupper Lake
Taconic-Poughkeepsie (VC rm)
Taconic-Wassaic (Staff Conf Rm)
Western NY-West Seneca (Rm 1-153)
Western NY – Perrysburg (VC Rm)
VC Guide for Families to Understanding OMRDD
Supports and Services 6/1 Newark
A video conference on A Guide for
Families to Understanding Supports and Services Administered by
OMRDD on 6/1/09 from 10 AM – 12 noon at the following DDSO's.
The purpose of this training is to introduce families to the
language of service delivery systems and to define and clarify
information about services and supports. Participants will gain
an increased awareness and understanding of eligibility criteria
and the eligibility determination process. The training includes
an overview of Medicaid Service Coordination (MSC), Home and
Community Based Services Waiver, and Family Support Services.
For questions regarding course content, call Mary Jo Hebert,
Capital District Office of Parent to Parent of NYS at
1-800-305-8817.
Register online at
www.omr.state.ny.us/wp/index.jsp or call OMRDD's Talent
Development and Training Office at 518-473-1190.
VC A Guide For Families to Understanding Supports & Services
Administered by OMRDD (G1024V)
Session 11764
Date 06/01/2009
Time 10:00 am to 12:00 pm
Location Finger Lakes DDSO - Newark
Need help preparing for a CSE or CPSE meeting?
The Advocacy Center is pleased to offer several free advocacy
workshops.
Monday
April 6, 2009
6:00 – 8:00 pm
Managing the Move: Moving from one school year to the next can
be
challenging as you and your son/daughter begin to work with a
new team of people. This workshop will provide parents and other
team members with strategies to help promote a seamless
transition and lay the groundwork for a positive start to the
new school year.
Tuesday
May 12, 2009
6:00 – 8:00 pm
Advocacy Steps 101: Advocacy is the act of pleading for,
supporting, or recommending. A parent might engage in advocacy
on behalf of his or her child; a person with a disability may
advocate for him or herself. Groups of people may join forces in
systemic advocacy efforts to change laws or policies.
Regardless of the scope, the process of advocacy is similar.
On each of these dates, there will also be an open forum prior
to the workshop to ask questions specific to your own child's
situation.
"Ask the Advocate"
5:30 – 6:00 pm on each of the above dates
There are no fees for these events, but pre-registration is
required. Space is limited.
To register, please contact Anna Costalas @546-1700 ext. 265
or by e-mail:
Costalas@advocacycenter.com.
All sessions will be held at our office at
590 South Avenue
Rochester, NY 14620
Sponsored by The Advocacy Center,
Midwestern NY Transition Site, Monroe #1BOCES,
And Monroe 2-Orleans BOCES
Thursday April 2, 2009
6:30-8:30 PM
West Irondequoit High School
260 Cooper Road
Rochester, NY 14617
Families and staff are invited to attend an Agency
Fair. Agencies from Monroe and surrounding counties,
that provide supports and services to individuals
with disabilities, will have informational booths
set up and be available to answer questions.
Services will include:
Eligibility criteria for OMRDD, VESID, and CBVH
SSI and Medicaid
Advocacy Consortium for College Students with
Disabilities
Day programs
Supported/competitive employment
Residential opportunities
Recreational opportunities
Self Advocacy Association of New York State (SAANYS)
Person Centered Planning
Respite
Institute for Innovative Transition (IIT)
To register, or for more information,
Please contact Parent Partners
Jeanne Ricigliano
jean_ricigliano@boces.monroe.edu
377-4660 x2601 or
Colleen Dox-Griffith
cgriffit@monroe2boces.org
349-8882
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Free Workshop April 6th:
Topic: Financial Planning for Special Needs Child:
Understanding Government Programs (SSI, SSDI, Medicaid/Medicare
Waivers)
Click
HERE for Flyer and more information
Hosted by James C. Traylor, Director Of Financial Planning at
Financial Architects
FREE ADVOCACY WORKSHOP
For Parents of Children with
Disabilities
Building a Team
Presenter: Kathy McCarthy-Proulx
When: Tuesday, April 21, 2009
6:00 – 8:00 PM
Where: Keuka Lake School
270 Lake Street
Penn Yan, NY 14527
Communication is key to effective
partnerships. Participants in this
workshop will identify barriers to
good communication. They will learn
techniques to remove the barriers
which will, in turn, lead to the
development of effective teams.
Sponsored By: The Advocacy Center
This workshop is free, however,
PRE-REGISTRATION IS REQUIRED by:
4/20/09.
To register, or for more
information, please contact Anna
Costalas at
(800) 650-4967 ext 265. |
CP Rochester:
Join us for some warm hearted cheer at our
Sip and Tip fund-raising event on
April 23,
2009 from 5-8 pm at the
Strathallan
550 East Avenue
Rochester, NY 14607
Staff and friends of CP Rochester will be
serving behind the bar. Tips from CP
Rochester's evening at Strathallan will be
dedicated to CP Rochester's Augustin
Children's Center. We're also featuring a
Silent Auction with some very special items
for your bidding pleasure.
We look forward to sharing this very special
evening with you!
RSVP to our hot line at 334-6000 ext 339
Visit our web site: www.cprochester.org
Free Educational
Workshop on
Wednesday April 22nd.
Time: 6-8pm
Location: The Arc of
Livingston-Wyoming
County
18 Main Street
Mt. Morris, NY 14510
Speaker: James Traylor,
Director of the
SpecialCare Planning
Team at Financial
Architects
Topic(s): Special Needs
Planning
Special Needs Planning:
A person centered
planning process focuses
on the development of a
Life Care Plan that will
help enable the person
with a disability to
obtain the best quality
of life possible.
Creating a life care
plan involves
coordination with
qualified accountants,
attorneys, medical
professionals, service
coordinators, and
financial professionals.
We hope you can attend
this free educational
session.
Please feel free to
contact James Traylor
with any questions you
may have prior to the
event.
For details about other
upcoming seminars about
Letter of Intent, Life
Care Plan, Special Needs
Trusts, Guardianship,
and Government Programs
please email
dboyce@finsvcs.com.
James Traylor
Director
SpecialCare Planning
Team
Financial Architects-MassMutual
600 Clinton Square
Rochester, NY 14604
Office (585) 399-8367
Fax (585) 423-9635
Email
jtraylor@finsvcs.com
Insurance Representative
of Massachusetts Mutual
Life Insurance Company (MassMutual)
and affiliates,
Springfield MA
01111-0001.
Representative of and
securities products and
investment advisory
services offered through
MML Investors Services,
Inc., a MassMutual
subsidiary. Supervisory
Office: 600 Clinton
Square Rochester NY
14604 (585)-262-5600.
MassMutual Financial
Group, William D
Costello CLF, General
Manager.
|
Dr.
Margot Weinberg
Upstate's
only integrative
medicine practioner
presentation
Discuss
how toxins in the home,
environment, foods and
personal hygiene
products can
disrupt
the immune system and
effect behavior leading
to an increase in the
diagnosis of asthma,
allergies and
developmental
disabilities
Brochure
Thursday April 30th
6:30-8:30
CP
Rochester
Rochester, NY
Cost
$20/professionals,
$10/parents
Please contact Erika
Brace (585) 334-6000
x234, e_brace@cprochester.org
with any questions
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Subject:
Housing Options Workshop May
4 Henrietta
Let's chat about
housing options for
people with
disabilities.
Monday, May 4, 2009
from 6:30 pm to 8:30
pm
Henrietta Public
Library – Community
Room
455 Calkins Road,
Rochester, NY 14623
Parent to Parent of
NYS would like to
invite you to an
informal discussion
about housing
options for people
with disabilities
living in NYS and
some of the supports
available.
Lorraine Blum,
Western Region
Coordinator for
Parent to Parent of
NYS will do an
overview of the
different housing
options available to
people with
disabilities
including agency
housing, shared
living options and
information about
renting or buying a
home. She'll talk
about some of the
supports and
incentives available
if renting or buying
a home is a
consideration.
She'll introduce
some worksheets to
help with the
planning process.
Susie Nettleton,
Finger Lakes Region
Coordinator for
Parent to Parent of
NYS will take you on
a journey down the
road of
"Consolidated
Supports". Susie
will give a
realistic look from
a parent's
perspective of what
it is like to travel
down the
"Consolidated
Supports" road.
She'll talk about
why the trip is
important to her,
the timeline and
some of the bumps
she has hit along
the way.
Everyone will
receive a "Housing
Options Guide for
People with
Disabilities" and
other handouts.
There will be plenty
of opportunity for
discussion and
questions. This
workshop is for
parents, people with
disabilities and
professionals.
Please plan on
joining us for an
evening of
information sharing
and discussion about
housing.
To register please
send the
registration form by
Friday, May 1, 2009
to Susie Nettleton,
Parent to Parent of
NYS, The Advocacy
Center, 590 South
Avenue, Averill
Court, Rochester, NY
14620. You can also
fax it to
585-223-2481, email:
fingerlakesp2p@frontiernet.net
or call 585-546-1700
ext. 242 with the
information.
Name: ____________ _________________________________
# attending:
_______________
Phone # __________________
Email address:
_______________________________________
Parent to Parent of
NYS - Connecting and
supporting families
of individuals with
special needs.
__._,_.___
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FUNCTIONAL ANALYSIS AND TREATMENT OF SEVERE BEHAVIOR
DISORDERS:
METHODS FOR CLINICIANS & EDUCATORS
BRIAN IWATA, Ph.D. Our website: www.bisoxford.com
Sponsored by Behavior Intervention Specialists, Inc .
ROCHESTER, NEW YORK MAY 6 - 7, 2009
Dr Brian Iwata
will conduct a
two-day workshop,
"Functional
Analysis & Treatment of Severe Behavior Disorders,"
in
Rochester, New
York on May 6-7, 2009.
Psychologists may
earn 11 CE credits, BCBAs & BCABAs 12 Type 2 CE credits. Brochure is
on
http://www.bisoxford.com/
and in the
Attachment.
Walt Antonow, PhD, Behavior Intervention Specialists Inc. Phone (662)
234-1640 ]
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Free Educational Workshops on Special Needs Planning
Tuesday May 19th.
Time: 6-8pm
Location: LDA Life and Learning Services
339 East Ave, Suite 420
Rochester, NY 14604
Speaker: James Traylor, Director of the SpecialCare Planning
Team at Financial Architects
Topic: Special Needs Planning
Special Needs Planning: A person centered planning process
focuses on the development of a Life Care Plan that will
help enable the person with a disability to obtain the best
quality of life possible. Creating a life care plan involves
coordination with qualified accountants, attorneys, medical
professionals, service coordinators, and financial
professionals.
Feel free to contact James Traylor with any questions you
may have prior to the event.
James Traylor
Director
SpecialCare Planning Team
Financial Architects-MassMutu al
600 Clinton Square
Rochester, NY 14604
Office (585)399-8367
Fax (585) 423-9635
Email
jtraylor@finsvcs.com
Insurance Representative of Massachusetts Mutual Life
Insurance Company (MassMutual) and affiliates, Springfield
MA 01111-0001. Representative of and securities products and
investment advisory services offered through MML Investors
Services, Inc., a MassMutual subsidiary. Supervisory Office:
600 Clinton Square Rochester NY 14604 (585)-262-5600.
MassMutual Financial Group, William D Costello CLF, General
Manager.
Parents!!! Learn skills for the Special Education Process
Advocate for your own child and other
families, too!
The Advocacy Center announces a free, eight
session training for
parents of children with developmental
disabilities.
Tuesdays, March 24, 2009 – May 19, 2009
9:30 am – 1:30 pm (no class Tuesday,
4/21/09)
Classes will start promptly at 9:30 am.
Participants are welcome to
arrive anytime after 9:15 am for beverages
and networking.
To be held at:
The Advocacy Center
590 South Avenue
Rochester, NY 14620
Light lunch will be provided each week
Topics to be covered include:
• Fostering positive interaction between
schools and families
• Successful methods to approach CSE/CPSE
meetings
• Improving communication skills
• Developing effective IEP or 504 plans
• Accessing and interpreting school records
• Learning about classification, evaluation,
and placement options
• Proven techniques to help parents having
difficulty with the special
education process
• Supporting other parents by attending
meetings and conducting phone
consultations
Parents who complete this training may be
asked to assist other
families with advocacy issues in the year
following the training.
Pre-registration is required. To request an
application, call
546-1700 or 1-800-650-4967 ext. 256
2009 Sunshine Camp applications
We will not be mailing out paper copies this year in order
to reduce
costs.
The application will be posted online at www.rochesterrotary.org.
It
will be on the home page as well as under "Sunshine Campus"
and
"Camper and Staff Applications" on the left side menu.
Please read all pages carefully. You must completely fill
out pages
5-12 of the application and return them by May 15th to the
Rochester
Rotary Office.
Kelly A. McKay
Relationship Director
Rochester Rotary
100 Meridian Centre, Suite 304
Rochester, NY 14618
585.546.7435 P x210 (Sept. 1-June 1)
585.533.2080 P x103 (June 1-Sept. 1)
585.546.8675 F
www.rochesterrotary.org
Pieters Family Life Center
Sibshop 2009 Meeting
Calendar
Free Sibling Workshop and
Support Circle,
for children ages 8-14, who
have a sibling with special
needs.
Sibshop: is a program just
for children who have
brothers and sisters
with developmental
disabilities and or chronic
health challenges.
Twice a month year round,
unless otherwise noted,
these siblings meet
at the Pieters Family Life
Center and hang out, network
and support
each other. These children
all know what it is like to
have a family
member with special needs
making the experience
unique, informative,
and supportive. Participants
can unwind through
recreational and
educational activities, as
well as have opportunities
to express
themselves through a wide
variety of activities unique
to the Life Center.
*Participating children
should wear sneakers, socks
and comfortable
clothing.
Meeting Dates for Winter
2009
Saturday January 10, 2009
12:00 – 2:00pm
Saturday January 24, 2009
10:00am – 12:00pm
Saturday February 14, 2009
12:00 – 2:00pm
Saturday February 28, 2009
10:00am – 12:00pm
Saturday March 14, 2009
12:00 – 2:00pm *
Saturday March 28, 2009
10:00am – 12:00pm *
Saturday April 11, 2009
12:00am – 2:00pm
Saturday April 25, 2009 10am
– 12:00pm
*I will be going to
Washington DC in March but
unsure of which weekend
as of now. I may have to
switch one of the dates.
Thanks for your
understanding!
** Times for the Sibshop
have changed to 12:00 –
2:00pm the 2nd
Saturday of each month and
10:00am - 12:00pm the 4th
Saturday of each
month starting in January
For more information and to
obtain a registration form
please contact
Julie Buick at (585)
487-3502 or
jbuick@pietersfamilylifecenter.org
*
registration is required to
attend this free Sibshop.
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Individualized Education Program Diploma –
Announcement of Public Policy Discussion
Groups
At their July 2008 meeting, the Board of
Regents discussed the Individualized
Education Program (IEP) diploma for students
with Disabilities and recommended that the
State Education Department seek public
comment on the continuation or modification
of policy relating to this diploma to
address concerns raised by parent and
student advocacy organizations, members of
the Commissioner's Advisory Panel For
Special Education Services and others that:
*Data show a greater than expected
percent of students with disabilities
exiting school with IEP diplomas.
*A decision by the Committee on
Special Education (CSE) that the student is
expected to achieve an IEP diploma often
results in lower expectations for that
student.
*Too often, the decision about the type
of diploma the student is expected to
achieve is made earlier than necessary in
the student's educational career.
*Once this decision is made, such
students may not be enrolled in courses that
would lead to high school credits necessary
for graduation with a
regular high school diploma.
*Students and parents are often not
aware that an IEP diploma is not considered
a regular high school diploma.
*Without a high school diploma, a
student's access to post-secondary training,
education and employment options is limited.
*The IEP diploma identifies the
individual as a student with a disability,
raising concerns about the identification of
an individual with a disability in the
student's transcript.
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Family Education Training Workshop
Schedule
The Advocacy Center is pleased to announce:
Family Education Training Workshops
Breaking Down Barriers and Building a Team
January 22, 2009 ~ 10:00 AM - 12:00 PM
Creating Your Advocacy Notebook
March 19, 2009 ~ 6:00 PM - 8:00 PM
An Overview of Guardianship, SSI & SSD
May 14, 2009 ~ 10:00 AM - 12:00 PM
These training opportunities are for parents
of children under the age
of 18 who are enrolled in the Medicaid Home
and Community Based
Services Waiver. Families can attend up to
two classes each year.
If you are interested in any of the
trainings, contact Anna Costalas
at 585-546-1700 ext. 265.
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The Midwest Regional SETRC Office
presents…
CSE/CPSE Parent Rep Training
January 22,2009 9 am - 1 PM Room 6
Monroe 2 BOCES,
3599 Big Ridge Rd, Spencerport
February 2, 2009 9 am - 1 PM
Room D Genesee Valley BOCES,
80 Munson St, LeRoy
February 3, 2009 9 am - 1 PM
Room 2B Monroe 1 BOCES
15 Linden Park, E Rochester
February 5, 2009 9 am - 1 PM
WFL Room Wayne Finger Lakes BOCES
131 Drumlin Court, Eisenhower Bldg, Newark
This session is designed for new CSE parent
representatives or for
Other parent representatives who would like a review
session. Topics
Will include:
* CSE – a student centered process
* Disabilities
* Continuum of Services
* IEPs
* Due Process
Any questions? – call Cyndi Besig at (585) 249-7025.
To register fax this form to (585)218-6267 or mail
the bottom portion
Of this sheet to Cyndi Besig, 15 Linden Park,
Rochester, NY 14625.
Check date(S): __ January 22 __ February 2
__February 3
__February 5
Name __________________________ School District
_____________________
Special Needs
______________________________________________________
I.e. Interpreter, large print
Home Phone (for emergency cancellation use only)
(___)_____________
CSE Parent Rep Training
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Webster
Parent to Parent & SEPTA Present:
Building Effective Advocacy Skills in the Annual Review
Process
Presenters: Kathy McCarthy-Proulx, Advocate and Parent
Trainer
&
Jean Tydings, Advocate The Advocacy Center
January 15th, 2009
7pm
Thomas H.S. Library
Advocacy is defined as the act of pleading for,
supporting, or
Recommending. A parent might engage in advocacy on
behalf of his or
Her child; a person with a disability may advocate for
him or herself.
Groups of people may join forces in systemic advocacy
efforts to
Change laws or policies. Regardless of the scope, the
process of
Advocacy is similar. This workshop will outline the
basic steps of
Effective advocacy in the annual review process.
Learning Objectives:
1. Learn the basic steps required for effective advocacy
2. Practice the steps using hands-on activities
3. Learn that advocacy does not need to be adversarial
to be effective
Contact information:
Colleen Brown 546-1700 ext. 267 or
brown@advocacycenter.com
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The Developmental Disabilities Planning Council
would like to add new
members to their Council. If you are a parent or a
person with a
disability who would be interested in serving on the
Council, this is
a link to the site where there is more information.
http://www.ddpc.state.ny.us/pages/bl_council_application.htm
The link includes the questionnaire that should be
completed. The New
York State Developmental Disabilities Planning
Council (DDPC) is a
governor-appointed body of 35 people in the
following categories:
people with developmental disabilities; parents,
guardians or
relatives of people with disabilities; and agency
representatives.
Funded through the Federal Developmental
Disabilities Assistance and
Bill of Rights Act (D.D. Act), the Council seeks to
assist New Yorkers
with developmental disabilities. Because Council
members terms are
limited, there are vacancies available for consumer
and family members
most years.
If you have questions about the work of the Council
and the duties of
members, contact Anna Lobosco at (518) 486-7505 or
alobosco@ddpc.state.ny.us
.___
"Challenging Behaviors in Individuals
With Developmental Disabilities" -
Conference October 30th at Golisano
Children's Hospital (click on link
to see registration brochure)
REFERENCE POINTS: My Voice, My
Vote
My Voice, My Vote is a new website for
young adults with disabilities
who want to learn about the voting
process and make a difference in
their communities. The site includes
resources for voters in Minnesota
and across the country, including the
many different ways one can vote
and what it means to be a good citizen.
The website includes an
open-captioned video on the voting
process. It also includes an ASL
video, "Voting: You Decide".
More information on the website and the
videos can be found at
http://www.myvoicemyvote.org
PTP
Parent to Parent
Supporting families of children who
receive services from IEP’s and 504’s
Our
mission
PTP
is a volunteer group of parents
providing an opportunity for all parents
to gain information and direction to
help themselves, their children and each
other while in the educational system.
We encourage parents/ guardians to
become their child’s best advocate.
PTP and Webster’s SEPTA(Special
Education Parent Teacher Association)
have collaborated to bring you the
following presentations during the
school year of 2008/2009.
(All presentations will be held at the
Thomas H.S. Library 7pm – 9pm)
10/16/08: Homeopathic Alternatives for Children with ADHD
& other Special Needs
Presenter: Gregory
Peechatt DHM, PhD, ND
1/15/09: Building Effective Advocacy Skills in the Annual
Review Process
Presenters: Kathy
McCarthy-Proulx, Advocate and Parent
Trainer
Jean
Tydings, Advocate
The
Advocacy Center
2/26/09: Mock Committee on Special Education Annual
Meeting
Presenters: Kathy
McCarthy-Proulx, Advocate and Parent
Trainer
Colleen
Brown, Public Education Coordinator
The
Advocacy Center
3/26/09: Managing the Move (how to make successful
transitions in school)
Presenters: Kathy
McCarthy-Proulx, Advocate and Parent
Trainer
Jean
Tydings, Advocate
The
Advocacy Center
5/21/09: Developing a Vision and Portfolio for Your Child
Presenters: Kathy McCarthy-Proulx,
Advocate and Parent Trainer
Colleen Brown, Public Education
Coordinator
The
Advocacy Center
For any questions concerning your
child’s education please contact:
Denise Palis, SEPTA Chairperson @
671-2198
The Advocacy Center @ 546-1700 ext 359
For questions concerning the
presentation, please contact Colleen
Brown @ 546-1700 ext. 267
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PSY PARENTING WORKSHOPS Pittsford Youth Services (PYS) is offering 3 Parenting
Worshops this fall. The instructor for all classes is
Loraiane Young, LMSW.
“Through
the Looking Glass - Helping To Identify and Understand
Attention Deficit Disorder” For parents or
guardians of children with symptoms of ADD/ADHD – 4 daytime
or evening sessions.
This workshop will
address: what is ADD/ADHD, diagnosing & treatment, how
it affects the family, school, and peer relationships and
how to better parent a child with ADD/ADHD.
Evening sessions--Tuesdays, 7-9:00 PM – 9/30, 10/7, 14, 21
Daytime sessions -
Wednesdays, 10:30am-2:30 PM–-10/1, 8, 15, 22
“1-2-3
Magic - Effective Discipline for Children 5-12”
For parents or
guardians of children ages 5-12 – 5 daytime sessions
Developed by Dr. Thomas
W. Phelan, this workshop addresses the challenging task of
child discipline by using easy-to-follow steps without
yelling, arguing or spanking.
Wednesdays, 10:30 am-Noon – 11/5, 12, 19, 12/3, 10
“Surviving
Your Adolescents (Children 13-18)”
For parents or
guardians of children ages 13-18 – 5 evening sessions
Developed by Dr. Thomas
W. Phelan, this workshop will address how to manage and let
go of your 13-18 year olds. Topics will include
communication and safety, risk-taking behaviors, 6 kinds of
testing and manipulation and setting house rules.
Wednesdays, 7:00–8:30 PM – 11/5, 12, 19, 12/3, 10
All workshops will be
held at the Spiegel Center, 35 Lincoln Avenue, in Room 205.
Fees are $80 for an individual or $100 for a couple (limited
scholarships available).
In order for the
workshops to be most effective, we request that you commit
to all consecutive sessions. Space will be limited to
14 individuals on a first-come first-serve basis.
Registration forms are
available at the PYS website
WWW.PittsfordYouthServices.org
Call PYS at 248-6299 or e-mail
pys2486299@aol.com with any questions.
Improving Quality of Life for People with
Disabilities:
You Can Help Others!
The New York State Commission on Quality of Care and
Advocacy for
Persons with Disabilities (NYS CQCAPD), in partnership with
eighteen
organizations involved in providing services and supports
by, with and
for people with disabilities, are working together to learn
more about
the diverse lives of people with disabilities. This
information will
help service providers and those who plan services and
supports make
them more responsive to people with disabilities.
To help us gather this information we are conducting two
major
activities:
1) Focus groups - We are holding focus groups across New
York State to
learn how people with disabilities and their family members
define a
good quality of life, what supports a good quality of life,
the
challenges faced and what would improve quality of life.
2) Quality of Life Stories - We are reaching out to people
with
disabilities and their family members to volunteer to tell
us their
story by sharing their thoughts about these basic questions:
· How would you describe your quality of life?
· What makes a good quality of life and what are the
challenges to
having a good quality of life?
·What might improve your quality of life?
We can learn so much from one another by sharing stories and
life
experiences. Your contributions are invaluable to help
people learn
more about the various lives of people with disabilities.
To speak with someone about holding a focus group or
obtaining the
Quality of Life Stories guidelines, contact Mindy Becker,
Davin
Robinson or Karen Malcolm at NYS Commission on Quality of
Care
Advocacy for Persons with Disabilities at1-800-624-4143,
email Mindy
Becker at
mindy.becker@cqcapd.state.ny.us (voice, TTY,
Spanish)
or you can download the Quality of Life Story guidelines on
our
website at: www.cqucapd.state.ny.us
Janice Fitzgerald
Parent to Parent of NYS
www.parenttoparentnys.org
518-359-3006, fax 518-359-2151
CDS Presents Transition Services:
Join fellow educators as we discuss the importance of
transition services and the
opportunities available to students with developmental
disabilities. During this information
session participants will:
♦ Experience the many activity centers and wellness
opportunities at the heart of CDS’
Life Transitions Center.
♦ Hear about vocational, recreational and life skill
programs for young adults,
♦ Gain invaluable information from program directors and
company leaders about the
many options available to students at CDS — where “It’s all
about abilities,” and
♦ Tour CDS’ brand new Life Transitions Center
When: Two dates to choose from:
Session 1: September 17, 2008 9am-noon deadline: September
12th
(or)
Session 2: October 15, 2008 3:30-6:30pm deadline: October
9th
Refreshments will be provided
Audience: Local Educators, School Counselors,
School-to-Career Coordinators, Administrators,
CSE Personnel, Special Education Teachers
Facilitator: Shanna Branciforte, CDS Life Transitions
Coordinator
Presenters: CDS Program Directors
Location: CDS’ new Life Transitions Center, 860 Hard Road,
Webster, NY 14580
To register or for questions, contact SHANNA BRANCIFORTE at
(585) 347-1631 or email
sbranciforte@cdsunistel.org
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REGISTER
NOW!
ICDL
12TH ANNUAL INTERNATIONAL CONFERENCE
November 7, 8, 9, 2008
Pre-Conference Workshops on November 6
REDEFINING THE POTENTIAL FOR
EMOTIONAL AND SOCIAL
FUNCTIONING IN CHILDREN WITH AUTISM AND
SPECIAL NEEDS
Hilton McLean, Tysons
Corner, Virginia
(Washington, DC Metro Area)
For a PDF
version of the conference
brochure, including registration
form,
click here. For
more information on the
conference sessions and
speakers,
click here.
To register online, please sign
into the ICDL Portal at
My.ICDL
(Note: To those of you
visiting My.ICDL for the
first time, you will be
asked to enter your contact
information so we can add
you to the list of users and
generate a new password for
you. Thank you in advance
for completing this
step. Make sure to listen to
the personal invitation from
Dr. Stanley Greenspan
once you have entered your
contact information.)
FEATURING
MORNING PLENARY
PANELS
-
Friday:
New
Research on
Social and
Emotional
Gains in
Children
with ASD
-
Saturday:
New Insights
into
Identifying
and Treating
Medical
Conditions
Associated
with ASD
-
Sunday:
A Bioethical
Approach to
Overcoming
Problems
with
Behavior and
Aggression
in the
Education of
Children
with ASD
A CHOICE
OF AFTERNOON
CONCURRENT
SEMINARS
• Adolescents:
Using the
DIR Model
• Beginning
Floortime
• Can You
Outgrow the
PDD
Diagnosis?
• Children
and Babies
with Mood
Swings
• DIR and
Advocacy
• DIR
Programs for
Middle and
High School
Students
• DIR and
Psychoanalysis
• Evaluating
Outcomes
• Facilitating
the
Development
of Oral
Motor/Speech
Skills
• Greenspan
Social
Emotional
Growth Chart
• Individual
Differences
in the
Application
of Language
Strategies
• Integracion
Escolar y
Problemas de
Comportamiento
• The PLAY
Project
• Prosody in
Autism
Spectrum
Disorders
• Sensory
Motor and
Regulatory
Treatment
• Social and
Interactive
Groups
• Understanding
Aggression
from a DIR
Standpoint
• And many
more
PRE-CONFERENCE
WORKSHOPS
• The
Affect Based
Language
Curriculum (ABLC)
with Diane
Lewis, M.A.,
CCC-SLP
• Communication
Through the
DIR Lens,
taught by
Sherri Cawn,
M.S.,
CCC-SLP and
Cindy
Harrison,
M.Sc., Reg.
CASLPO
• DIR
Programs
for
Pre-School
and
Elementary
Age Children
taught by
Monica
Osgood and
Lauren
Blaszak
• The
DIR and IEP
Goal Bank,
taught by
Monica
Osgood and
Lauren
Blaszak
• Floortime
for Novice
Players
taught by
Barbara
Kalmanson,
Ph.D. and
Molly Romer
Witten,
Ph.D.
• Medication
in the
Treatment of
Developmental
and Learning
Disorders
taught by
Joshua Feder,
M.D.
• Representing
Cognition in
DIR:
Insights
into
Language
Impairment
and Visual
Spatial
Processing
Challenges,
taught by
Serena
Wieder,
Ph.D.,
Gilbert
Foley, Ed.D.
and Sima
Gerber,
Ph.D., CCC
• Sensory
Organization
and the DIR
Model,
taught by
Rosemary
White, OTR/L
• Using the
DIR Approach
in Feeding
Therapy,
taught by
Diane
Cullinane,
M.D.
For a PDF
version of the
conference
brochure,
including
registration
form,
click here. For
more information
on the
conference
sessions and
speakers,
click here.
To register
online, please
sign into the
ICDL Portal at
My.ICDL
(Note:
To those of
you visiting
My.ICDL for
the first
time, you
will be
asked to
enter your
contact
information
so we can
add you to
the list of
users and
generate a
new password
for
you. Thank
you in
advance for
completing
this
step. Make
sure to
listen to
the personal
invitation
from
Dr. Stanley
Greenspan
once you
have entered
your contact
information.)
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Transitioning School Age Students with Disabilities
What: Winter Transition Conference
(Formally held at Cornell University-Statler)
Date: December 9-11, 2008
Times: 12/09/08 7 pm-9 pm Opening Keynote and Dinner
12/10/08 8 am-5 pm Transition Workshops & MTP presentations
12/11/08 8 am-noon Transition Workshops & MTP presentations
Noon - 1 pm Closing Keynote/Awards Ceremony and Lunch
Participants: School Teams, Model Transition Program's,
Agencies,
Secondary Educators, Administrators, Guidance, CSE Chairs,
Parents,
and VESID
Location: RIT Inn and Conference Center, West Henrietta, NY
Highlights: Over 30 break out sessions -College preparation,
Parent
Advocacy, Job Development, Assistive Technology, MTP initiatives
and
many more!
Awards ceremony- 2008 Theme- Honoring the Parent- A highlight of
the
power and support a parent brings to their child's life and
education.
Letters of recommendation for this year awards and honorariums
available to support parent registration may be sent via email
Hrose825@yahoo.com
. Please note PARENT on the subject line. Parent
need not be present to win.
Key Presentations:
Dr. Rebecca H. Cort, Deputy Commissioner NYSED VESID
Dr. Edward Placke, Assistant Commissioner NYSED VR
Ellen Arnold, Ed.D, Author and Consultant who provides materials
and
trainings that support children, teenagers, college students,
adult
learners and parents in learning more about their brains'
efficiency
and effectiveness.
Connie Ferrell, Owner of Integrated Services, works nationally
to
provide information on employment and inclusion for marginalized
people. Her specialty areas include disability, employment,
Social
Security, and person-centered planning.
Jeff Klare, CEO of Hire DisAbility Solutions, formed in 2000 to
focus
on employment and recruiting talented men and women with
disabilities
Kenneth L. Grisham, President / CEO Premier Assistive Technology
has
worked with Higher Ed institutions (SUNY) across New York for 3
years
they received an award for outstanding contributions to
disability
services from SUNY in 2006 for The Key to Access, a portable USB
MP3
Player which enables the student to take their Assistive
Software with
them.
Registrations must include full payment-checks only.
Costs include Registration, meals, workshop materials &
sessions.
Breakfast provided 12/10/08 and 12/11/08
Lunch provided 12/10/08 and 12/11/08
Dinner provided 12/9/08 and 12/10/08
$300.00 per person
Space is limited - register early
Room arrangements on your own
Please send Registration and payment to Denise Bates, 134 Seneca
Street, Hornell NY 14843
Checks only -made out to GST BOCES.
You will receive confirmation of registration and payment
Name: ____________________________________
Title: ______________________
Affiliation:
__________________________________________________________
Email/Phone:
__________________________________________________________
Please note if you are part of an MTP by indicating the Lead
district/BOCES name
MTP Project Name:
__________________________________________________________
Our team will participate in the poster session held 12/10/08
Yes No
$300.00 per person
Space is limited - register early
Model Transition Program -Cornell University and University of
Buffalo
Council of New York Special Education Administrators
Greater Southern Tier BOCES
Transition Coordination Sites of Mid-West and Mid-State
The Garden Café Presents:
A Fall Speaker Series
The Speaker Series is made up of workshops from The
Advocacy Center,
Parent to Parent, NYS and Heritage Christian Services.
These workshops
are geared for families who have a loved one with a
disability.
Whether you are new to the system and advocating or a
seasoned parent,
there is a topic here that will meet your needs. Come
learn, share,
and meet others who understand what it is like to be a
parent,
grandparent, or guardian raising a child who has a
disability.
Registration is required to attend these free workshops
with a minimum
of 10 registered participants.
September 27, 2008
10:00am – 11:00am Pieters Family Life Center
Supports and Services of Heritage Christian Services
Come learn about how Heritage Christian Services can
support your
family. David Desmond will be here to talk about
services for
children, teens, and adults as well as Service
Coordination, respite,
therapeutic, and recreation programs, residential and
work options for
adults. It is never too early to find out about life
after high school
and what transitions services Heritage can offer.
__________________________________________________________
October 11, 2008
10am – 11:30 Pieters Family Life Center
Advocacy Steps 101
Description Advocacy is defined as the act of pleading
for,
supporting, or recommending. A parent might engage in
advocacy on
behalf of his or her child; a person with a disability
may advocate
for him or herself. Groups of people may join forces in
systemic
advocacy efforts to change laws or policies. Regardless
of the scope,
the process of advocacy is similar.
This workshop will outline the basic steps of effective
advocacy.
Presenters: Laura Arrington and Jean Tydings
Learning Objectives Participants will:
1. Learn the basic steps required for effective advocacy
2. Practice the steps using hands-on activities
3. Learn that advocacy does not need to be adversarial
to be effective
----------------------------------------------------------
October 25, 2008
10am – 11:30 Pieters Family Life Center
IEP: Individualized Education Programs
Description When a child qualifies for special education
services,
the federal law requires that a document, called an
Individualized
Education Program, or IEP, be developed. This workshop
will prepare
parents to actively participate on the IEP team by
understanding how
to write meaningful goals and create an IEP that is an
effective
working document.
Presenters: Kathy McCarthy-Proulx and Kerri Noyes
Learning Objectives Participants will:
1. Become familiar with the steps in developing and IEP
2. Understand the sequence of steps
3. Be able to recognize measurable or non-measurable
goals
4. Be more confident reading their child's IEP
November 8, 2008
10am – 11:00am
"Parents of Teenagers Know Why Animals Eat Their Young"
Adolescence is a tough time for young adults and their
families but
add the additional challenge of disability into the mix
and it is
amazing that anyone makes it through the adolescent
years. Imagine
the "terrible twos" on steroids!
There are no easy answers to surviving the adolescent
years. This
interactive presentation will share the challenges,
frustrations and
humor of living with adolescents.
Susie Nettleton, Finger Lakes Regional Coordinator
Parent to Parent
of New York State
November 22, 2008
10am – 11:30 Pieters Family Life Center
Developing Your Child's Vision & Portfolio
Description It is sometimes difficult to articulate the
dreams we hold
for our children with disabilities. Participants in this
workshop will
develop their vision statement for their child's future.
After the
vision has been explored, participants will learn how to
create a
friendly portfolio that they can use to introduce their
child to any
professional in his or her life. The portfolio is a
great tool to
help with any transition. Depending on the vision and
need,
participants will also be able to use portfolio pages to
express their
child's strength, family, hobbies and "Things you should
know about
them".
Presenters: Laura Arrington and Colleen Brown
Learning Objectives
1. Develop a vision statement for their family member.
2. Understand why vision is an important tool for any
transition is
the child's life
3. Learn how to create a friendly portfolio they can use
to introduce
their child to any new professional in his/her life
4. Understand how to keep a portfolio positive in
promoting the
child's strengths
December 13, 2008
10am – 11:30 Pieters Fam ily Life Center
Managing the Move (Preparing for Next Year's Team)
Description Moving from one school year to the next can
be challenging
as you and your son/daughter begin to work with a new
team of people.
This workshop will provide parents with strategies to
help promote a
seamless transition and lay the groundwork for a
positive start to the
new school year.
Presenters: Kathy McCarthy-Proulx and Jean Tydings
Learning Objectives
1. Learn to prioritize the information to be shared with
the new team
2. Review ideas about what is/isn't appropriate
information to be shared
3. Become familiar with suggested timelines which may
help ease the
end of the year crunch
The Pieters Family Life Center
1025 Commons Way
Rochester, NY 14623
(585) 487-3500
www.pietersfamilylifecenter.org
This is quite an article
on childhood mental illness, primarily
bi-polar disorder.
http://tinyurl.com/4qpm7d
When Claire, a pixie-faced 6-year-old in a
school uniform, heard her older brother, James, enter the family's
Manhattan apartment, she shut her bedroom door and began barricading it so
swiftly and methodically that at first I didn't understand what she
was doing. She slid a basket of toys in front of the closed door,
then added a wagon and a stroller laden with dolls. She hugged a
small stuffed Pegasus to her chest. "Pega always protects me," she said
softly. "Pega, guard the door."
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